Wednesday August 21 we got devastating news. Bree had an MRI and it showed that her tumor has grown about a half inch. Her doctor told us that we are taking her off the temodar and going to put her on a combination of meds, avastin and irinotecan. Avastin attacks the growth of new blood vessels. We are doing this in hopes that it starves the tumor. Avastin costs more than my house! Irinotecan is a strong chemo than temodar. It attacks the cancer cells differently than temodar. I was so in shock with the news that I didn't catch how it attacks differently. We are waiting on insurance to approve these meds before we start them. If these meds don't work there is nothing else we can do treatment wise. The doctor doesn't think she'll make it to Christmas.
I've done nothing but cry and throw up since Wednesday. She is doing so well with no symptoms. I thought for sure the tumor was stable. I was caught so off guard. I have no words to express my emotions. I feel like I've already lost her a thousand times and now I get to watch her deteriorate and slowly die. A 3 year old should not have to go thru this. I have no words.
praying for your family
ReplyDeleteI'm so so sorry Lara. We'll continue praying for her and your whole family. (hugs)
ReplyDeleteWe are praying for you guys. I am so sorry to hear this.
ReplyDeleteKeeping you in our family's prayers
ReplyDeletePrayers for you and your family. May you find comfort and peace through this unspeakable trial.
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ReplyDeleteI am so sorry that you and your family are going through so much! I could not imagine! I hope that I don't offend you but if you know about this then just disregard. I know that I dont know you but I feel like I wouldnt be able to go to sleep without letting you and your family know. I have two little boys myself and I am so sorry about this news! I have just recently gotten into essential oils by Doterra. They are one of the best essential oils companies on the market. I have started experimenting with different oils for myself, my husband, and our 2 little children. So far I have been able to cure a bleeding diaper rash within 24 hours, an ear ache within 24 hours or less, a bee sting stung me and the pain was gone instantly, and I didn't get the flu while everyone else did. (I did just figure out the oil to use after my kids got sick as well after daddy.) Now I am trying another oil for some nerve damage I got after a surgery I got this last summer and it happens to be the main one that is recommended for brain cancer. I don't know if it will help or not but I know that I would try it! Frankincense is the name, a couple of others mentioned are myrrh, and clove. The first recipe I have in my doterra book is: Combine 15 drops frankincense, 6 drops clove, and 1 Tbs. fractionated coconut oil. Massage lightly on spine every day. Diffuse 15 drops frankincense and 6 drops clove for 30 minutes, three times a day. Recipe 2: Diffuse frankincense and massage the brain stem area lightly with frankincense. I will keep your daughter and your family in my prays.
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