We have had an amazing month full of creating memories! I just wanted to say thank you to everyone who has made this possible for us. We had a wonderful lady bug release where we let off 4,500 lady bugs. We had a blast in park city just hanging out as a family. We had a lovely lady bug party at the radio station, KUSA. We had a blast in Yellowstone and bear world. We enjoyed an amazing tea party with the Elmo young women. We had the most amazing mascots come and visit us. (Harley even got arrested!). Felix Falcon, Grizzbee, Harley, Willy, And Kodiak came to our house for a visit. They gave Brylee a precious guardian angel. They even took us to Bree's soccer game in a pink hummer! All the mascots were riding on the top of the hummer which resulted in us getting pulled over by 2 price police officers! The officers were so sweet and ended up giving us a police escort to the soccer field. The mascots ended up making every kid smile by playing in all the soccer games and taking pictures with everyone. It was amazing to share this special moment with so many children! We also were apart of the halftime show at the Real Salt Lake soccer game. We then had an amazing fundraiser dinner at Salsa Leedos in Herriman. Once again Felix made Bree's night wonderful! She absolutely loves him! She was giggling uncontrollably as they were playing a high five game! I love seeing her smile like that! When we left all she could say was that she misses Felix. The dinner was an amazing turn out! We were able to raise enough money to go to Disneyland! We are leaving Saturday! We are so excited! I promised Bree I'd take her for her 4th birthday. When we found the tumor progression in August I was devastated that she isn't going to make it to that birthday. But because of the wonderful generosity of family, friends, and complete, amazing strangers I am able to keep that promise to my baby girl! Thank you so much everyone! My heart is full!
Bree has been handling her new chemo protocol surprisingly well. She doesn't get sick anymore like the first week she had this chemo. It makes her really tired but she hasn't thrown up or had diarrhea like the first time. She has been having issues with her left eye again. The eye doctor is having us patch her right eye with the hopes of making her left eye stronger. Bree has to wear the eye patch for 2 hours a day. She has also been having troubles opening our door knobs. The tumor is causing troubles with her muscle coordination. I've been slowly trying to change them all to levers. Thank you for the few that were donated. We've been able to put a lever on the main rooms she uses.
Thank you everyone for your love and support
It's been a crazy busy week. We finally started Bree's new chemo protocol. We had her irinotecan on Wednesday. This one attacks the cancer cells in a different way than the temodar did. Hopefully it'll be more effective than the temodar. We didn't start the avastin till Friday because it was taking forever to get approved by our insurance. The avastin costs more than our house and this one attacks the capillaries. Hopefully it'll starve the tumor by killing its source of nutrition, her capillaries.
Cory and I put together a bucket list of things to do with Brylee. We created this list with the hopes that it would distract us from the horrible news that her tumor is growing and at the same time create unforgettable memories of our little girl. We put some outrageous things on there as well as easy to accomplish things. Everything from making handprints to riding in a hit air balloon. We are feeling extremely blessed and thankful to the Children and the Earth foundation and our friend Sara who have been promoting Bree's bucket list. We have a date for almost everything on the list. They've all been paid for or donated by loved ones and complete strangers! We couldn't ask for a better way to spend our last moments with our daughter. Thank you so much everyone!
If you'd like to make a donation to the bucket list you can send it to:
Children and the Earth
C/O Olson family
252 W Cottage Ave
Sandy, UT 84070
Bree's bucket list:
Meet president monson
Build a Bear
Cheer at a BYU football game
Go to the beach
Go to Disneyland
Lady bug release in her flower bed (done)
Thanksgiving point (done)
Cheer at a U of U football game (done)
Feed the elephants (done)
Go sledding (done)
Princess ball/prom (done)
Ride the polar express (done)
Ride in a hot air balloon (done)
Ride a horse (done)
Go to the circus (done)
Go to Yellowstone/bear world (done)
Disney on ice (done)
Tea party (done)
Hand print in cement (done)
Brylee Olson was diagnosed with a DIPG, an inoperable brain tumor (infiltrating brain stem glioma) on Wednesday, March 6, 2013. This is a blog for her and her fight to be in the 5% who survive 3-4 years. Or the rare chance of complete survival.