I've decided that I hate radiation. The doctors said that it is suppose to help alleviate her symptoms. I have yet to see my baby girl come back. She still can't stand on her own. She still is slurring her words. She still can't smile. She still can't swallow. And she sleeps all the time and is constantly saying her head hurts. The only time she does talk is when she's coming out of sedation after the radiation. And this isn't even nice talking! She's mean. She scratches, bites, kicks, and spits. She yells for us to all go away and leave her alone. I don't know if I can do this for 6 horrible weeks! I miss my cute, bubbly, talkative little girl. I want the sweet giggles back. And the hundred "Mama"s in a row followed by the ummmms after I ask what. I miss the smile that lite up her eyes. I miss how she would squeal when I chased her down the hall. I miss the eskimo kisses followed by butterfly kisses at bedtime. I miss the none stop chatter about her baby sister. I miss her telling her brother that he needed to obey the rules. I miss her so much and all I have right now is a ghost of what use to be. I had the most horrible thought today while I was watching her sleep, I thought that she's always going to be a vegetable and she's never going to be my little girl again. The doctors promised that she would come back and they better be right. I do not want these next few weeks to be how I remember my princess.
Tears roll down my face as I read your blog everyday. Strangers in a small town but my heart aches for you having to watch your baby go through this. Your a wonderful mother Lara to share your love, light, & feelings with the world. Praying for your family everyday!
Lara, I wish I had words that could comfort your soul. Please know that God has a plan and something is to be gained from all of this. I believe that you must be one of the strongest mothers in the world. Prayers going out for you and your precious daughter.
I seriously can not imagine how much strength you have. Thank you for sharing these words. You've made me realize that I need to cherish the little things my boys do, even if they drive me crazy. Your family is in my prayers and I hope that those doctors are right!
I cry every time I read your post Lara I look at my little girl she's the same age and it completely breaks my heart. U are the strongest women I know. I could not imagine how u feel. God has a plan for her and as hard as it is he choose her. I'm Jennys cousin I don't know if u remember me but your family is in my prayers and I'm selling a ton of the bracelets for your baby girl.
I cant imagine your pain. It's painful to just read about her battle. With all this pain please never think of yourself as a horrible mother. You are by her side, you are trying with every ounce of strength in your body. You are a wonderful mother. She loves you and you love her. I pray that she has this miracle and beats all odds.
Lara, I am of a friend of Larry and Sylvia. One of my friends from Missouri just lost their 13 year old son Will to Glioblastoma Multiforme. They are the Jacobs family. My friend Trena has a facebook page called Prayers for Will. I thought you might be able to contact Trena if you wanted to speak to someone who knows what you are going through. She is an amazing person. There is another website called NEGU.org. NEGU stands for Never Ever Give Up. It was started by the parents of a 12 year old girl named Jesse that lost her battle with brain cancer. You might be able to find support through them too.Our thoughts and prayers are with all of you. Lucy Perkins
I am soo sorry to hear about what has been going on. I pray for you and your family. I know these are words you hear every day. I wish there was more to say or do. All I can say is you are an amazing mother with amazing strength and I pay someday I am anywhere near the parent you are. Love to you and your family.
Brylee Olson was diagnosed with a DIPG, an inoperable brain tumor (infiltrating brain stem glioma) on Wednesday, March 6, 2013. This is a blog for her and her fight to be in the 5% who survive 3-4 years. Or the rare chance of complete survival.
Tears roll down my face as I read your blog everyday. Strangers in a small town but my heart aches for you having to watch your baby go through this. Your a wonderful mother Lara to share your love, light, & feelings with the world. Praying for your family everyday!
ReplyDeleteLara, I wish I had words that could comfort your soul. Please know that God has a plan and something is to be gained from all of this. I believe that you must be one of the strongest mothers in the world. Prayers going out for you and your precious daughter.
ReplyDeleteI seriously can not imagine how much strength you have. Thank you for sharing these words. You've made me realize that I need to cherish the little things my boys do, even if they drive me crazy. Your family is in my prayers and I hope that those doctors are right!
ReplyDeleteI cry every time I read your post Lara I look at my little girl she's the same age and it completely breaks my heart. U are the strongest women I know. I could not imagine how u feel. God has a plan for her and as hard as it is he choose her. I'm Jennys cousin I don't know if u remember me but your family is in my prayers and I'm selling a ton of the bracelets for your baby girl.
ReplyDeleteWishing you all the best!
ReplyDeleteI cant imagine your pain. It's painful to just read about her battle. With all this pain please never think of yourself as a horrible mother. You are by her side, you are trying with every ounce of strength in your body. You are a wonderful mother. She loves you and you love her. I pray that she has this miracle and beats all odds.
ReplyDeleteLara,
ReplyDeleteI am of a friend of Larry and Sylvia. One of my friends from Missouri just lost their 13 year old son Will to Glioblastoma Multiforme. They are the Jacobs family. My friend Trena has a facebook page called Prayers for Will. I thought you might be able to contact Trena if you wanted to speak to someone who knows what you are going through. She is an amazing person. There is another website called NEGU.org. NEGU stands for Never Ever Give Up. It was started by the parents of a 12 year old girl named Jesse that lost her battle with brain cancer. You might be able to find support through them too.Our thoughts and prayers are with all of you. Lucy Perkins
Lara,
ReplyDeleteI am soo sorry to hear about what has been going on. I pray for you and your family. I know these are words you hear every day. I wish there was more to say or do. All I can say is you are an amazing mother with amazing strength and I pay someday I am anywhere near the parent you are. Love to you and your family.
-Anastasia