We got discharged from the hospital today. It's both exciting and nerve racking. I'm excited to get out of that awful hospital room but I'm nervous that I'm going to mess up her care. She is still on the feeding tube so I have to learn that. And she's taking the entire pharmacy! I hope I can keep all the meds straight and times that they need to be given. We don't get to go all the way home so we're staying at my mom's. It would be pointless to drive the 2-3 hours home just to drive back up every day for her radiation. Mom's house is a huge savior for our budget. Now that I'm reunited with my other kids I'm scared that I'm still not going to be able to sleep. Bryker, my 4 year old, was diagnosed with Type 1 Diabetes 3 years ago. So I get up in the middle of the night and check his blood sugar at 11pm, 2am, 5am, 8am. On top of that now I have to give Brylee her meds at 10pm, turn her feeding tube off at 11:30pm, another med at 1am, and turn her feeding tube back on at 7:30am. Geez, it's going to be a long night.
I just want to recognize my mom in all this. I know she is really struggling with the thought of losing Brylee but yet she still can find it in herself to do so much for my family. She had my other children while we were at the hospital while making time to come visit Brylee. She also bought a brand new bed for my family while we stay here until the middle of April. She has been more than willing to serve us in anyway possible. I truly am grateful for her and I hope that one day my children will think the same way about me.