I'm happy to announce that the day got better! I took a break and ate a piece of cheese cake while my mom listened to Brylee scream. I went back with a much better attitude. And although Bree's attitude did not change I could handle it because mine did. I'm trying to be as positive about this situation as I possibly can be. I don't want my last memories to be awful ones about her being a beast and me constantly yelling. I jut keep remembering that it's her meds that are making her act like this because this is not my normal girl. We will be getting a break from these meds at the end of April and all of May (if the tumor reacts like the doctors want it to). So I just keep telling myself to hang in there. It's only a short while till she's back. I can do this.
However, I do need to just stop tubbing her and combing her hair! She is completely bald on the under part of her neck now. I did have a weak moment of tears. But I finally cut one of her little ringlets to put in a memory book just in case it doesn't come back in perfect little ringlets. Today was definitely a roller coaster of emotions. Usually I can pick out what emotion is more pronounced during the day but today was all over the map!
Brylee Olson was diagnosed with a DIPG, an inoperable brain tumor (infiltrating brain stem glioma) on Wednesday, March 6, 2013. This is a blog for her and her fight to be in the 5% who survive 3-4 years. Or the rare chance of complete survival.