I need to clear some things up so I stop getting my feelings hurt and I stop wondering why people don't get it. I must not have been clear enough when I talked to people or wrote on this blog or facebook. Brylee's tumor is 100% fatal. 95% of people die within 9-11 months after diagnosis. 5% survive 2-3 years after diagnosis. I need that 2-3 years that's why I keep saying Brylee is going to make the 5%. And when I talk about her dying it's a for real thing. I am going to lose my baby. And I know everyone is trying to be uplifting and helpful, and I appreciate it, but I'm not being depressing or unbelieving when I talk about her passing. I'm being honest and blunt. I need everyone to understand that in order for her remaining time on this earth to be the most wonderful time possible. I love her so much and I don't want to lose her. But I am going to. When I say pray for a miracle I'm being serious. That is the only way she is going to remain on this earth is by a miracle sent straight from God himself. But in all reality she'll be gone as early as Christmas or as late as her 6th birthday. That's why my life is on pause. I need every last remaining second with her before she goes on to greater things. She is the most amazing, special little girl I've ever met. She is loved by so many people and I know everyone is going to miss her. But you all need to know that her time is limited so make whatever memories you possibly can before she is gone because she will be leaving us...it's just a matter of when.
Brylee Olson was diagnosed with a DIPG, an inoperable brain tumor (infiltrating brain stem glioma) on Wednesday, March 6, 2013. This is a blog for her and her fight to be in the 5% who survive 3-4 years. Or the rare chance of complete survival.